How I Healed My Gluten Intolerance – Part 1

Just over a month ago I worked up the courage to announce some big news… I’ve successfully been able to heal my body and re-introduce gluten into my diet! (This is a HUGE goal that I was set on achieving before starting a family.) If you haven’t read the intro to my story yet, that’s a great place to start as it contains some really important points that I won’t be repeating here. Within hours of hitting ‘publish’ I received an overwhelming amount of love and support. I feel very grateful to have such a strong community of people around me that believe deeply in the body’s ability to heal itself. Thank you for your encouragement, it has helped me find the strength to continue sharing my story despite the negative feedback I’ve received from those who are not yet ready to have their deeply held beliefs challenged.

Ironically, I can truly relate to these people because I used to be one of them. I distinctly remember having a conversation with one of my classmates at the Canadian School of Natural Nutrition back in 2005. The topic of Celiac Disease came up and she very boldly stated that she didn’t believe that CD was incurable and that it was indeed possible for the body to heal itself. I remember getting really angry and felt my blood starting to boil. While I kept my cool externally, internally I was MAD. All I could think of was, “How dare she say that? Who does she think she is? Clearly she doesn’t understand how serious and real Celiac Disease is!” Today, I need to find and thank that woman because SHE had the courage to speak HER truth and it planted a seed in my mind that maybe Celiac Disease wasn’t forever. While I didn’t know it at the time, THAT was the start of my healing journey even though I hadn’t even received a diagnosis yet.

thank you note for every language
Creative Commons License photo credit: woodleywonderworks

 

I’ve decided to break my journey up into segments, which will make it a lot easier for me to write, and hopefully a lot shorter for you to read! I’ve determined that the best place for me to start is at the very beginning… sharing what my life was like before being diagnosed with Celiac Disease. Since I’m still very passionate and knowledgeable about the topic despite the fact that I can now eat gluten it’s my hope that this information will spread far and wide to help increase the diagnosis rate of Celiac Disease. It’s still a very real and serious condition that is grossly under-diagnosed and it’s very necessary to eat 100% gluten-free for a period of time (for most that will be forever) in order to help your body heal and break the cycle of inflammation and damage to the villi on your small intestine. As I mentioned in my previous post this is not a case of simply removing gluten from my diet and after a period of time being able to re-introduce it without any ill effects and just ‘thinking’ I am healed. I went through a much deeper healing process and want to be very clear that I do not recommend that anyone who has been diagnosed with CD eat gluten (even if they don’t feel any noticeable effects, because you could still be damaging your small intestine.) This post also warrants a reminder to my readers that I am not claiming to have found the cure for Celiac Disease or gluten sensitivity; I am simply sharing my personal journey. Okay, enough with the disclaimers and onto my story…

My Childhood and Adolescent Years

I could easily write a book about my health challenges through this period in my life but for the purposes of this blog post, I’ll keep it short and sweet. Just enough to give you some background information but not enough to bore you ;) I spent the majority of my childhood and adolescent years in pain (physically and emotionally) and was often sick and unwell. I can’t remember exactly when it started because I have no memories of feeling healthy but I’ve been told that things started to shift for me around the time that my parents got divorced when I was six years old. While I don’t consciously remember the experience my family told me that I was very upset and like a typical child thought it was me that had done something wrong and caused the break up. It’s clear to me that this has nothing to do with my parents and everything to do with how I responded to their divorce as a young child. The separation was in the best interest of everyone and I place no blame on any outside sources for any of my life experiences. As a child who was nicknamed a ‘worry wart’ and felt excessively stressed all the time, it is interesting to note that the anger, sadness and grief I felt after the divorce was internalized and held within my body… not surprisingly, shortly after that my frequent stomach aches began. The stomach aches progressively turned into excruciating stomach pains, which there was no apparent medical cause for and I eventually received a diagnosis of IBS or Irritable Bowel Syndrome since nothing else was found to be ‘wrong’ with me. (I’ve read that 1/3 of Celiac Disease patients have been previously diagnosed with IBS.)

Growing up in an Italian family, wheat and dairy was eaten at every meal. Cereal with milk for breakfast, sandwiches for lunch and pasta with cheese for dinner. While I won’t be going into detail, I will simply say that mealtimes were the most stressful time of the day for me as a child. Knowing what I know now (and what my parents didn’t know at the time) Stress + Ingestion of Food = Poor Digestion. It makes perfect sense to me that I went on to develop an intolerance to both gluten and dairy. What started with frequent tummy aches, digestive problems and agonizing stomach pains as a child turned into bloating, fatigue, depression, brain fog, irritability and mood swings as a teenager and continued into my adult life. (85% of patients with Celiac Disease have a atypical, non-gastrointestinal symptom presentation.) At 15 I was diagnosed with clinical depression and given anti-depressants. They didn’t work for me and all came with a different set of horrible side effects. I decided they weren’t for me. Deep down inside I knew that it wasn’t normal for a 15 year old to be severely depressed. I then set out on a mission to read everything I could get my hands on that pertained to natural health, nutrition and alternative healing modalities. I was determined to find the cause of all my health complaints.

Testing and Diagnosis

When I learned about Celiac Disease and found that my symptoms fit the picture perfectly I went to my doctor and requested a blood test (TTG-IgA). When the test came back negative I was confused because I was sure this is what I had been suffering from. (Years later I discover that I have an IgA deficiency so this test is inconclusive, but not necessarily negative.) By this time I had already removed dairy from my diet but was still unwell. I decided a trial of the gluten-free diet was in order and removed it to the best of my ability. All of my gastrointestinal symptoms went away within days and I felt better than I had in years. I was convinced that I had figured out what was wrong with me. After a year of eating gluten-free and still suffering from depression and anxiety I became very confused and started to think that I had made a mistake and that gluten wasn’t the issue because my depression had not subsided on the gluten-free diet. I was living on my own at 16, working full-time and going to high school full-time while trying to manage a gluten and dairy-free diet on a small budget, in a small town where no one knew what gluten was. I re-introduced gluten and felt fine, my symptoms didn’t worsen or get better. I put the whole ‘gluten-free’ thing behind me and continued on with my life.

Fast forward to 2006. I’m nearing the end of my studies in holistic nutrition (which had a dual purpose, to learn more about how to heal my own health challenges and to start a career where I could help others with all the knowledge I had gained over the years) and we start learning more about Celiac Disease. A light bulb goes off in my head. Since re-introducing gluten into my diet when I was a teenager, slowly but surely all of my symptoms had returned over the course of the months and years that passed and I hadn’t noticed the connection. On top of that I was dealing with secondary issues from my body’s apparent lack of ability to absorb nutrients properly. Again, the profile of Celiac Disease seemed to fit, so I went to go see my doctor and requested the blood test (TTG-IgA). Weeks later when the test results were in, I was really disappointed to discover that it was negative because I was convinced that I had finally found the cause of all my symptoms after years of health challenges. (In North America, it takes an average of 10 years to receive a diagnosis of Celiac Disease from the first onset of typical symptoms.) This time I didn’t give up, I started to research Celiac Disease extensively and learned that if you have an IgA deficiency then the blood test will be inconclusive (ie. even if you have CD it will come back negative.) I went back to my doctor and requested a Total IgA blood test… not surprisingly it showed that I had an IgA deficiency! (Immunoglobulin A or IgA is 10 to 15 times more common in patients with CD than in healthy individuals.)

The next step to getting a Celiac diagnosis (in most circumstances) is to be referred to a gastroenterologist for a biopsy of the small intestine to assess whether or not there is any visible damage to the villi, the tiny, hair-like projections that line the small intestine allowing nutrients from food to be absorbed. When people with Celiac Disease consume gluten, the villi become damaged and a person becomes malnourished, no matter how much food they eat. While this is the ‘gold standard’ for diagnosis, it can also provide false negatives if the few portions they remove to observe under a microscope are not damaged but other parts of the intestine are. Unfortunately, getting diagnosed with Celiac Disease isn’t black and white, they are many shades of grey since false negatives (and false positives, when it comes to blood testing) is possible.

I was referred to a gastroenterologist and had to wait 3 months for my consultation appointment while continuing to poison myself by eating regular amounts of gluten. (If you stop consuming gluten your intestines will heal and the biopsy will be inconclusive.) After my consultation, I’d have to then wait for a surgery date. While I recommend that clients get the biopsy so they have ‘proof’ that they have Celiac Disease in order to adhere to a 100% gluten-free diet, I struggled with the decision for myself. For one I KNEW that I had Celiac Disease and by this point I was so sick and so depressed that I was afraid I might not make it another 3 months (yes, I was THAT depressed and they couldn’t schedule me in any earlier.) Second, it’s an invasive procedure, albeit with only small risks but I was still uncomfortable with it. The biopsy would prove to the DOCTOR that I had Celiac Disease, not to myself.

On February 14, 2007 I went completely gluten-free. This was months before I received my diagnosis because I was so ill that I couldn’t leave the house and I was unable to follow through with my Valentine’s Day plans. I had reached my breaking point; I decided on that day, that with or without a diagnosis, I was committed to following a gluten-free diet for life.

Gluten Free Aisle
Creative Commons License photo credit: Whatsername?

 

Within days of removing 100% of the gluten from my diet I noticed a huge improvement. Within weeks I felt better then I had in my life and within a few months I was nearly free of ALL my symptoms. I felt like a completely different person. I remained healthy and happy as long as I adhered to a 100% gluten-free diet. Any amount of cross-contamination (I’m talking a fraction of a bread crumb here) would cause a debilitating return of my symptoms and the effects would last up to 2 weeks. I finally understood why I didn’t experience relief from my depression the first time I went gluten-free for a year when I was a teenager. It’s because I was not 100% gluten-free! I was probably really close but that wasn’t enough. Being trained as a nutritionist and having studied Celiac Disease I was now able to look back and see that even though I was doing my absolute best, I was still getting very minute amounts of gluten in my diet and that was triggering me. When I learned this time around that even a tiny amount of gluten would cause symptoms for up to 2 weeks it made sense that I had struggled with depression almost non-stop that whole year I was gluten-free. This provided a huge amount of insight for me, because I had known years ago, that gluten was an issue but since testing couldn’t prove it, I questioned my intuition.

I returned to my doctor and shared with her how I felt on a 100% gluten-free diet and what would happen if I consumed a small amount. It truly felt like I had experienced a miraculous recovery. Since I was no longer a candidate for a biopsy as I was already gluten-free, I requested a gene test to determine whether or not I carried one or both of the two genes (HLA-DQ2 and/or HLA-DQ8) associated with Celiac Disease. This test is not affected by a gluten-free diet.

Here is some background information on gene testing from Dr. Alessio Fasano, who is the director of the Center for Celiac Research:

“Celiac disease (CD) is an immune-mediated disease of the intestines that is triggered by the ingestion of gluten in genetically susceptible individuals. Gluten is the major protein component of wheat, rye, and barley. Genetic predisposition plays a key role in CD and considerable progress has been made recently in identifying genes that are responsible for CD predisposition. It is well known that CD is strongly associated with specific HLA class II genes known as HLA-DQ2 and HLA-DQ8 located on chromosome 6p21. Approximately 95% of CD patients express HLA-DQ2, and the remaining patients are usually HLA-DQ8 positive. However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals. Thus, HLA-DQ2 or HLA-DQ8 is necessary for disease development but is not sufficient for disease development; its estimated risk effect is only 36-53%.”

I carry the HLA-DQ2 gene.

Let’s break this down even further, in plain English… Celiac Disease is genetic, meaning it runs in families. Approximately 30% of Caucasian individuals carry the HLA-DQ2 gene but not all of them will go on to develop CD therefore genetic testing alone cannot be used to diagnose Celiac. It can however, be used to rule it out. What is important to note is that an individual can carry this gene and NEVER go on to develop CD in their lifetime OR they will carry the gene and it becomes triggered at some point in their life (after surgery, pregnancy, childbirth, viral infection or severe emotional stress such as divorce, death of a loved one etc.) and they develop Celiac Disease at that point in their life. Of those that are diagnosed with Celiac Disease (presumably by a positive biopsy test) approximately 95% carry the HLA-DQ2 gene.

Sound confusing? The road to a clear diagnosis is for most people. That’s probably one of the reasons why the Canadian Celiac Association reports that the prevalence of Celiac Disease is approximately 1:100 in the North American population and approximately 97% of individuals with Celiac Disease are undiagnosed. With an incredibly low 3% diagnosis rate, CD is one of the most under diagnosed diseases in North American today. This has led to the metaphor that diagnosed Celiacs represent only the visible tip of a much larger undiagnosed iceberg.

My Diagnosis

My blood test for CD was inconclusive due to an IgA deficiency. A biopsy would have also been inconclusive because I had already removed gluten from my diet. The ‘gold standard’ for diagnosis was no longer possible.

Based on the fact that I carry the gene associated with Celiac Disease, my symptoms started after experiencing severe emotional stress as a child (increasing the probability of the gene being triggered), having typical and atypical signs and symptoms of CD which dramatically cleared up on a gluten-free diet and returned with a ‘gluten challenge’ my doctor diagnosed me with Celiac Disease and advised me to adhere to a gluten-free diet for life.

Why am I giving you so much background information?

Because the Canadian Celiac Association does not recognize my diagnosis as ‘official’ (even though my doctor gave it to me) so I want to lay all my cards on the table, face up so that there is no confusion or misrepresentation. I am fully aware that having a positive biopsy is the ‘gold standard’ for diagnosis but my doctor thought otherwise, based on MY individual case, which I greatly appreciated after years of being misdiagnosed.

At the same time I can appreciate how one could argue that maybe I never had Celiac Disease to begin with and that it was simply an allergy or sensitivity to gluten that I ‘grew out of.’ While I agree that I may never have had the intestinal damage to begin with (I’ll never know for sure), I disagree that it was simply an allergy that I grew out of. This is something that I had to work extremely hard at, which I’ll explain in further detail in another post. I will never be able to prove with 100% certainty (by medical standards) that I had intestinal damage that accompanied all my symptoms (and I don’t intend to allow it to come back just to prove my point.) It was clear to me and to my doctor that my body was suffering from malnutrition, likely from malabsorption and that I wasn’t suffering from a classic IgE mediated allergy. What cannot be argued is that for the 3 years I was 100% gluten-free, I would react very strongly to gluten (right up until I ate gluten one day with no ill effects). I have experienced a major breakthrough in my health!

“Whether you think you can, or you think you can’t – you’re right.” ~Henry Ford

I also understand and appreciate how one could believe that healing Celiac Disease and being able to eat gluten without intestinal damage is impossible because it’s an “incurable” disease, but I have to disagree. The field of science called epigenetics is teaching us that your DNA doesn’t predict your destiny. It’s showing us that genes can essentially be turned “off” just as the gene can be triggered to turn “on” (Remember I mentioned earlier in my post how you can carry the celiac gene and either never go on to develop CD or you can carry the gene and it becomes triggered at some point your life – after surgery, infection, severe emotional stress etc. and you develop CD.) Since your internal and external environment determines which of your genes will be expressed I always wondered if the Celiac gene can be triggered to turn on, why can’t it be triggered to turn off? (I highly recommend watching this video explanation of ONE component of epigenetics, the power of your thoughts and beliefs, by Dr. Bruce Lipton.) I believe that my Celiac gene is no longer expressing itself and THAT is why it’s possible for me to eat gluten again. In short, I believe that I have brought my body back into homeostasis, where illness and disease is no longer able to thrive and this new, healthy environment doesn’t allow the celiac gene to express itself anymore (which took me over 3 years to accomplish.) I am not however, claiming to have found the cure for Celiac Disease. I am simply sharing my experience, detailing what it took to bring MY body back into homeostasis so it’s full health potential could be expressed. This journey will be different for everyone. I can’t and won’t be creating a protocol that everyone can follow to achieve the same results! This is a HUGE topic and one I’m not going to delve into right now because I’ll cover it in future posts. In the meantime, if you’d like more information I highly recommend reading ‘The Biology of Belief’ by Dr. Bruce Lipton. That’s a great place to start if you want to learn about the science behind epigenetics. Having the opportunity to meet and listen to Dr. Lipton in 2009 literally changed my life.

If you’ve made it this far, thank you so much for reading!

It has taken me over a month (since writing my last post) to work up the courage to continue sharing my story. The love and support you’ve shown me has been overwhelmingly positive and has encouraged me to continue sharing my journey, one post at a time. As you can imagine there is SO much more left to tell you…

March 2013 Update: I’m WAY busier than I expected to be with my 9 month old daughter and running my business. I haven’t been able to find the time to sit, reflect and write about my experience of healing my gluten intolerance yet and had no idea at the time I wrote this post that it would take this long. Please understand that I WANT to share my story with you, I just need to prioritize my time right now and baby Madison is my first priority. I am celebrating 3 years of being able to re-introduce gluten into my diet this month. If it were as easy as telling you to do A. B. C. then I’d just post it but it wasn’t that easy. It took years to to get to where I am today, healthy and thriving with NO food allergies, sensitivities or intolerances for the first time in my life. I can promise you that I’ll share the rest of my story, I just can’t make any promises as to WHEN I’ll be able to do it. I’m sure life with a new baby will settle down at some point and I’ll be able to return to writing and blogging. Thank you for your patience and I apologize for not being able to respond to each comment right now.

October 2013 Update: PART TWO is now available!

Comments

  1. Laura says

    Thank-you for coming forward and sharing your story! It is so interesting to read and I know it will inspire so many people! Can’t wait to read more :)

  2. elizabeth says

    Keep going!

    I believe that the ‘gold standard’ of celiac diagnosis will change, as will its definition – it is too flawed. I also chose to not go the biopsy route, for a series of reasons. No regrets.

  3. says

    Not an easy story to share Crystal, thanks for having the confidence to do it!

    I am a firm believer the body can heal itself given the right environment and I look forward to reading the rest of your story.

    Way to go!!!!

  4. says

    Thank you for sharing your story! There are many similarities here to my own and I am having some testing done for Crohns this week. If I stay away from gluten, wheat and dairy..my symptoms drastically improve as well. In my 20’s I was told that I had IBS but as soon as I saw my Naturopath and went on a strict diet… I was much improved and further testing was cancelled! I am glad to be recieving the further testing now. I have worked in the Wellness Industry for many years and am now a wife and mum and have not been able to function at full capacity at the best of times. I look forward to reading more of your journey and again I thank you for sharing!

  5. Sarah says

    Please keep writing! I am on a gluten-free diet after testing only slightly positive on the blood test and 2 biopsies being “inconclusive”. My gastroenterologist said to go on the GF diet and if you feel better then we can assume you are celiac. My now 15 year old daughter is also on the GF diet when her tiredness became so extreme and she was so pale all the time. She tested positive 200 on the blood test!! (versus my 26). They wanted to do a biopsy on her, but with that high on the blood test we just put her on the the diet too and she feels so much better.
    But I want to hear more of your story, as I still don’t have perfect health and often wonder if I really am celiac, but too scared to test with some bread!
    I’m interested, so keep going!

  6. Shealagh says

    Hi Crystal, we went to school together at CSNN. So glad to hear your story, what an amazing journey you have been on. Look forward to reading more about all of this.
    I am very interested in the subject matter. All the best, Shealagh :)

    • says

      Oh my goodness! Shealagh, YOU are the woman I was going to try and find to say THANK YOU for planting the seed in my mind that *maybe* Celiac Disease isn’t incurable!! I can’t believe you found this post. I had lost your contact information and wasn’t sure how to get in touch with you. I bet you don’t even remember the conversation… makes this quote all the more real: “You never know how far-reaching something you think, say or do today will affect the lives of millions tomorrow” ~B.J. Palmer THANK YOU Shealagh :)

      • Shealagh says

        Crystal,

        When I read you blog, I knew I was the person that spoke to you about this. With my own struggles with chronic diseases, I have always wondered myself. I have an article that I read years ago that planted that seed for me as well. I am in the process of finding it and will send it along when I find it.
        Just where you are now, finding the courage to speak, is the same place I have been and moved through. What’s on the other side will be amazing in so many ways! My son is type 1 diabetic, there is a link with celiac. I am very interested in what is yet to come with your own experience and writing.
        My sister was diagnosis with celiac back in 1969, my Mom at the time work diligently making foods for her to eat, very little support back then. She was deemed not celiac when she was tested in her teens, she too gradually weaned herself back on gluten.

        I am a postpartum counsellor and facilitator as well, I work for the Pacific Postpartum Support Society, http://www.postpartum.org, we are in Burnaby and have been supporting mom’s and families for 40 years. (through pregnancy and until baby is 3) Thought you would like the information/resource to compliment your prenatal coaching business.

        Great to connect,
        Many blessings,
        Shealagh :)

  7. donna hemingson says

    Thank you for sharing.. as a diagnosed celiac 66 years ago and working as a RMT for over 30 years I have spent most of my life trying to understand this ‘disease’ and have heard many stories like yours. This gluten thing is very mysterious and in my opinion can be/is linked to so many other things… with degrees in pharmacy and psychology I still can’t make any definitive statements… and the new field of epigentics is very exciting!

  8. Richelle Walliser says

    Hey Crystal,

    Your story sounds so much like mine… so many of the things you said were just like my past and my experiences with gluten and celiac disease. Please keep writing. I’m still really sick all the time and the fact that you were able to bring your body back into homeostasis gives me a lot of hope.

    I really can’t wait to hear more!!!

  9. Claudette Varley says

    I have a 6 yo son with Autism. We both have food intolerances to wheat/gluten/dairy just to name a few. I too BELIEVE that we can “turn off ” the root cause that makes this so. We are in the middle of Neuro Integration System Therapy with a wonderful practioner in Vancouver.

  10. Kelly Maxwell says

    wow, Crystal, please keep writing and we will definitely keep reading! I am celiac based on blood testing and gastroscopy, and was asymptomatic except for poor iron uptake. Now my iron uptake is better (14 months gluten free) but my ttg tests still come back high. no idea what I’m missing! but I have a friend who knows a friend who had a celiac recovery; I can attempt to put you together if you like. not sure how that recovery was achieved. best wishes to you and your next phase… and for heaven’s sake please continue to help people with gluten issues. you have such huge knowledge/experience to share.

  11. says

    I am so convinced, more so every day, that stress and emotional and mental health have a profound yet medically unquantifiable affect on health. Because the mental and physical are so intertwined, it becomes a terrible playback loop. We say it in passing – “I think I’m just stressed” – but I truly believe that a HUGE proportion of the modern diseases we experience have their footing in both “foods of commerce” AND the stress we experience. Does that make sense? With all the ins & outs of the true mechanisms behind heart disease, etc., I can’t help but wonder how much the medically unquantifiable (even with Cortisol testing, I still consider it unquantifiable) stress we experience is a potent factor in determining risk.

    Sorry to ramble! Thank you so much for sharing your story. You’ve spoken so eloquently, and I think even the most skeptical, physicality-oriented medical professional could see the validity in what you’ve described.
    Liz recently posted: The Mediterranean Hoo-Hah

  12. says

    Crystal,
    Your courage, both in walking an “unofficial” path and sharing it publicly, is inspiring. I have a feeling your story will not only inspire but challenge people to consider new possibilities.

    Amazing.

  13. nadia di felice says

    I read your post with great interest! Good for you you are an amazing woman. I am your dad’s cousin (Livio’s) friend from Italy. Well, Livio’s son, as a baby got very sick and was diagnosed with CD. He is now 20 and nothing has changed-actually he’s suffering from alopecia which is said to be brought on by this disease…must be the family gene. However, please go on with your story it is very touching and exciting!
    Nadia

  14. Peter VG says

    Great Job Crystal!! I do remember your severe reaction to the crumbs from my ill gotten Timmies Bagels!! I did feel really bad about that! I can’t wait till part 2!

  15. says

    I can’t wait to learn more! My sister sent your link to me this morning. Reading your story has been like reading my own. Been g-free for almost 2 years now after having to diagnose myself. After years of endometriosis, chronic pain, depression, brain fog and an inability to find answers, I discovered that my problems were gluten (corn and rapeseed as well). I totally believe that we can be healed of anything. In fact, my healing process has come in stages as my faith has grown and my mind has become more open to other methods of healing. I used to consider my g-free diet my healing, but I would love to go further. Having to watch everything that goes into my mouth is crippling (and everything that goes on my skin as well).

    I’m very proud of how far you’ve come! Please keep writing!

  16. says

    Crystal, as someone who has also taken a “chance” in sharing personal transformational experiences in life I am honoured to read your story and I can’t wait to read more. Many blessings in this new chapter in your life. I am proud to know you.

  17. says

    Thank you for your valuable insights on reversing the nature of disease! After years of being programmed as victims of our genes, the new science of epigenetics now reveals that our perceptions and beliefs control the readout and activity of our genes. People routinely reverse the debilitating effects of cancer, diabetes, heart disease, multiple sclerosis and other devastating illnesses, why would celiac disease be any different?

    Please continue your story Crystal, I’m looking forward to Part 2. The information you provide offers people an opportunity to re-empower their lives.

  18. Sarah Donovan says

    Way to go Crystal! You’ve always been one of the strongest people I know – even when you were silently struggling from within xoxo

  19. shelley says

    Thanks for sharing this. I can relate to so many parts of your story. I have not been diagnosed but feel like all things point to celiac and that I need to be on a G-free diet. I have been avoiding it because I don’t know where to start and dread the thought of being the only one in my family with this problem so I would have to make myself something separate. I have to babies-one 4 and one 15 months and my fear is that one of them will have to live in pain the way I have since highschool. Your story has encouraged me to figure out the G-free diet. Thanks so much.

  20. Meghan says

    YOU are wonderful, brave and sincere. Thank you for sharing–it is an insightful and generous gift.

  21. jennifer says

    I am so proud of you for posting this. Keep up the good work! You are an inspiration for us who struggle with our health and who hope to help others with theirs!

  22. Cissy says

    Wow!

    As I was reading this it was like reading what happened to me.

    I believe my gluten intolerance happened after I lost my mom in 2003. Took me until 2009 & many trips to the doctor to try to figure this out myself!

    I started a gf diet & felt 100% after 1 month! I ate 100% GF for one year. In 2010 I found out I was expecting & I realized hat in the past when I was expecting all symptoms disappeared.

    So tried gluten & I felt fine.

    The baby is 4 months old & I can still eat gluten with no devastating effects.

    But I do have to say that my whole eating lifestyle has changed. Our bodies cannot handle trans fat/hydrogenated crap. So I don’t eat it.

    Thanks for your article!!!!

  23. Leilani says

    Thank you so much for sharing your journey with us. I’m attending CSNN right now (distance learning in Toronto), and I too am preparing my body in order to conceive a healthy baby. I slip up from time to time, but when I read personal experiences like your own, I feel more motivated to keep working towards my own optimal health, and to share my knowledge and experiences with others. Please keep writing!

  24. Amy Jopp says

    I’m sooo proud of you Crystal…..your an amazing gal, follow your heart!!!! After reading your background, it reminded me of all our memories. Your a strong girl and I’m very proud of the success you have achieved!!! XOXO

  25. says

    Crystal,
    That was a very inspiring post. I have been in the works of “self-diagnosing” my IBS and Gluten- sensitivity problem (with the support of my Naturopath) over the last year or so. It is a topic that really interests me and I appreciate you sharing your story. I hope to perhaps catch up more about it one day as i feel it has been a very challenging thing to try and conquer for me. I love your stories, and your sharing passion towards health!!
    Alicia H.

  26. Jana Ray says

    Thank you so much for sharing your story! I recently discovered that I have a gluten sensitivity. I am 100% convinced that it is curable and was so encouraged to read your story. Thank you for sharing. Our body is kind and forgiving and can change. I would love to hear more about how long you went off gluten before you re-introduced it and when you felt okay about re-introducing it again. Thank you again!

  27. Nathalie says

    Your story is inspiring. I’ve started reading your blog, and I’d love to know what’s happening now! I’ve never heard or though of doing a preconception period, but I love the thought of it (for some time in the future). Even as somebody who’s just trying to get as healthy as she can, your writing is fantastic. And you have a lot of courage to speak up about how you’ve healed yourself. I absolutely believe that you can, and you did.

    You’ve started influencing my life. I’m now a no ‘pooer too (I had never heard of that, either, and though I was buying organic products for my hair, I realized just how many ingredients I still didn’t know or recognize). And I loooooooove the raw brownies.

    Thank you so much for being so open. You’re a talented writer, and I really wish all the best to you.

  28. Lindsay says

    This is fascinating to me. I just recently was diagnosed with “gluten sensitivity,” though Celiac runs in the family. I don’t have the antibodies so I technically am not Celiac but I wonder if it’s a spectrum of damage.

    Anyways, I was not diagnosed by a doctor, a whole health nutritionist read my blood work and muscle tested me, and the diagnosis was confirmed with improvement on a gf diet, and immediate pain with a gluten challenge.

    What did interest me is that we muscle tested me before and after – prior to the removal of gluten, I couldn’t eat fats, sugars, any gluten, and all sorts of high sugar foods.

    After the inflammation in my body went down, some things that I appeared to be sensitive to were now absorbing properly again and other true food sensitivities showed up more clearly (soy, red meat, heavy creams). I found I could eat spelt because it was a shorter gluten chain, which is easier to digest, but I was unable to before due to my inflammation.

    I’m interested to know how you achieved homeostasis. I not only eliminated gluten but also completely changed my eating and life habits to include more greens, less sugar, almost no meat, no soy, and I started juicing. My nutritionist says the problem with celiac diagnoses is that the doctor says “remove gluten” with no further guidance. She helped me to achieve a more alkaline PH in my body instead of the highly acidic and unhealthy environment that the standard American diet promotes.

    • Malene says

      Could you explain what kind of inflammation you are talking about? I’d like to know. There’s an ayurvedic homepage that I came across that describes gluten intolerance as some sort of inflammation. I also believe it can be linked to excessive anger somehow. Also a kind of inflammation. This is what I think might have caused my own. I was too angry quarreling over the dinner table with my dad when i was in highschool, and working at a bakery (that i didnt really like) at the same time, thus eating lots of buns throughout the day.

  29. says

    Crystal – I’m so glad I happened to click on this link and read your story. I too have an intolerance to gluten and corn and believe I’ve suffered from the effects for years. Although I have a way to go, I believe I’m in better shape now then when I was in my 20’s. And I’m with you all the way on the healing aspect of this. When we tap into our creative power, we can align with the most powerful healings. Some of us are here to learn and teach through our experiences – as clearly you are. So thank you for the inspiration and the teaching.

  30. Teneal says

    I too have CD, unofficially diagnosed. No one ever “said” I had it but I went gluten free on my own before any testing was done and the test were all negative after that. I refused to start eating it again just for some “official” statement. When I have even a crumb from something I have pain, although it’s less intense than it was when I was eating full on gluten. Our 11 y/o has the same problem, we removed gluten and she started growing at a normal rate. About 4 months ago she started eating gluten here and there so we just let her do it, after about 4 days of eating lots of it she started having major pain and it was lasting for several days. We needed a note for school because they provide GF lunch *if you have an official diagnosis from the Dr* so one Dr. said she probably didn’t really have it and the lack of gluten would NOT effect the blood work but when we got there a different Dr said based on her symptoms and the trial run we did the blood work was totally UN-necessary and she would sign off on the note without the test. (Thank God for believers!). Today she can eat it some times, here and there, but I can’t do even a small amount. Amazing story, and amazing journey, thanks for sharing it with me!

  31. Julia says

    Crystal,
    Did you use EFT and work on the emotional components and past traumas as part of the healing? I have read the Bruce Lipton book and also believe that ANYTHING can be healed. I have used EFT with great success in my own healing from Celiac symptons and continue to work on healing my past with energy medicine approaches.
    I’m so happy for you. You do look so healthy and happy. Your skin is a glowing sign of how your digestive system has healed itself.

  32. Emma says

    Thank you so much for posting this. I’m reading this a year later but clearly it is still so helpful and inspiring to people. I self-diagnosed myself with a gluten intolerance 2 and a half years ago. Although I think I had a mild allergy/sensitivity for years leading up to that. Nothing was coming up on many of the tests I did. I was able to eat gluten up until a very emotionally stressful period in my life 2 and a half years ago which is what triggered a full on allergy/intolerance leaving me unable to eat it without getting a terrible rash all over. I cut gluten out of my diet before I realized I had to be eating it for a while to show up for celiac’s so I’m not sure if I have that. But I do know that my body does not like gluten! I’ve been doing NAET for the last couple of months and it’s really helped with other allergies/intolerances such dairy. Anyway I’ve had to repeat gluten this week because it didn’t work the first time. I got treated for it being genetic on my second NAET treatment for gluten, in case I do have celiac’s. There’s definitely an emotional link/side to gluten allergies which I think is the part that I need to face in order to fully heal. So I’ve been working on that and your blog was a godsend and has made me even more certain that I can heal myself, celiac’s disease or not. The fact that you found the lady who gave you hope at first gave me shivers. Julia – your post was also really helpful. I’ve been considering EFT and am also doing energy work along with NAET. I haven’t read the Lipton book but sounds like it may be helpful. Crystal, I know it takes a lot of courage to write about this and thank you for posting all the info you have. I’ll keep checking for part 2. :)

  33. Shannon says

    Thank you so much for sharing this and I can’t wait to share it with my mom and grandfather and coworkers with a gluten intolerance. I have read Bruce Lipton’s book as well!

  34. SarahH says

    Where did you get your genetic marker test done? Is there a lab in Vancouver that does this? No one seems to know about this test, although now I know 2 people who have had it done…

    • says

      Hi Sarah, I had my doctor write me a requisition and then went to a lab for the blood draw and it was sent to VGH. It was so long ago that I can’t remember exactly what I requested but I remember telling the doctor word for word what they needed to write because they had no idea but I kept pushing for it. Hope that helps!

      • Sarah H says

        yes – so helpful! since I posted the question, I took my husband and son into the doctor with the word for word details about the test, and asked for it to be done. The lab seemed very confused about the whole thing, but fingers crossed they sent the blood off to the right place.

        I just want to help my husband feel better; he is too young to be so sick – his mother and maternal grandmother are celiac.

        Thank you so much for posting this and answering my question!!

      • Sarah H says

        Thank you so much! We have gone ahead and asked our doctor for the test…the blood should be at VGH now! Fingers crossed it gives us some answers as to why my husband is so sick…and we’ll probably follow up with the biopsy for him if the test shows he has the genes for CD (his mom and grandmother do). For my son…well I just want to know if this is something I need to worry about as he grows.

  35. Malene says

    Thank you, thank you, thank you. So glad to find this homepage and forum! It would be so great to have more online discussions and personal stories about this issue since the western medical professionals seem to have no clue. I also diagnosed myself in 2004 and went to see an allergy doctor to get diagnosed (I live in Denmark, where you can get some money from the government if you have a diagnosis) Would you believe he did one of those needle tests on my skin on me to test for food intolerance and arrogantly asked me if I even knew what all these polysyllabic words (such as intolerance) meant? This experience kinda made me loose trust in the medical system over all, and thus I still have no diagnosis, not wanting to mess with my intestines just to proof something. I have for quite a long time felt that it was possible for me somehow to cure this condition, since it for sure has been a lot better than when it got really bad (when I was about 16-17, now about 12 years ago) And now that I seem to have found some support out there, I wonder if this dream of mine to be able to have a meal anytime anywhere safely, could come true in the year 2012! I think it’s possible :) Can’t wait to hear the rest of the story.

  36. Jade says

    Hi Crystal

    Good to hear how your healed yourself of your gluten intolerance. I too absolutely believe that anything can be healed. I am not sure how you did it. Have you covered this elsewhere? I have healed myself of several things in the past. I have something which I want to heal myself of now and I believe that I can. In the past I have used total belief in my Higher Self to heal me, but I believe that any method you think will work is fine. My body responds better to a wheat free diet. I was diagnosed with wheat allergies, but gluten wasn’t mentioned. So, if I eat wheat/gluten free I am much better. I have tried many times to eat in a different way, but when I do all the old symptoms return. However, I have recently decided to eat different foods again. There is something within me that knows that I can and will. Inspite of healing other things, this particular one is more long standing and so my mindset has been focused in that direction. I know that I have to let go of that in order to move in a different direction.

    Good luck.

  37. Kim says

    Thank you for your posts .. They have helped me a great deal. As a nurse I knew that something was wrong with me. Face swollen , tired, abdominal pain major depression , I had 3 botched rhinoplasties that brought on terrible stress. I feel like my surgeries brought the gluten sensitives . I’m in the process of being worked up for celiac disease. But my blood work came back normal . If I stay on the diet than I feel great . People say be careful with being on the diet if your not positive for celiac . Is this true?

  38. Kirsten E. says

    I was also healed of Celiac disease. My symptoms were so severe, even the slightest bit of contamination that wastn visible to the eye would cause severe symptoms. May 6th, 2012 a group of friends prayed over me and asked God to heal me. I was completely healed of both Celiac disease and of anhidrosis that cause severe and chronic episodes of hyperthermia. I am a new person. I Thank God.

  39. Deb says

    Please write more about how you cured your CD. My son is only 6 and has either gluten intolerance or CD. We have never received a diagnosis, but the first time I fed him bread he started screaming in pain within a few minutes. We recently tried to introduce gluten, but he went from very healthy to becoming extremely ill with pneumonia 3 times in less than 3 months (the last episode he had strep throat and bronchospasms along with the pneumonia and could barely breathe).

    We are vegan because of our religious beliefs and he is allergic to nuts so his diet is VERY limited. I would love to be able to have him eat gluten. Please publish the rest of your story as it would be helpful to so many people!

  40. Gina says

    Thank you for writing this. Will you post Part 2 soon? I became very gluten intolerant last year and I am trying to heal my body to prepare for having a baby, but I’m not sure what to do other than take probiotics. I know this is curable for me and that my body is out of balance right now. I would love to hear about the strategies you used; this is not talked about nearly enough. Thank you!

  41. Christy says

    Your whole blog seems to be such an inspiration to many people! I am allergic to gluten along with dairy and soy because of the damage originally from the gluten and I’m only 18 :/
    I would absolutely love if you could share the rest of your story! I really don’t want to be stuck with this allergy for life and I having somewhere to start on how to recover would be like a dream!

    Any way congratulations with your first baby :D and I’m sure shes beautiful.
    I may even try the no shampoo thing because it sounds like a great idea.

    Thanks for sharing your story!

  42. says

    Hi Crystal,

    That was an amazing post and I can’t wait to hear more. My best friend has really struggled with so many similar issues for diagnosing etc – it’s a real challenge. I look forward to hearing more…and I love all the details. Thanks for sharing!

    :) Gabrielle

  43. says

    Hi Crystal,

    I read your post and it is really inspiring to know how you got your self back to the norm. I would greatly appreciate if you can provide as many details as possible. You can help many others get back to the norm with your experience. Thanks a lot for Sharing your experience.. Looking forward to your second post with more details..

    Nims.. :)

  44. Cheri says

    I too am looking for the rest of the story. It looks like this was written over 18 months ago. Would love for you to continue your story :)

  45. Rammy says

    Hi,
    Your story is so inspiring. I have suffered for more than 8 years from the following issues:

    Abdominal Discomfort
    Excess flatulence
    Diarrhea on and off or frequent bowel movements in a day
    Fatigue and lethargy
    Muscle weakness
    No fever or getting bed ridden
    Lactose Intolerant
    Excess Hunger and excess weight loss

    All doctors are saying it is psychological but I have no stress in work
    I did the following tests and everything was normal.

    Liver Function test
    ESR
    Thyroid
    Diabetes
    Tuberculosis
    CT Scans
    Stool and Urine examination
    Ultrasound
    Creatinine test
    Blood Count
    Vitamin B12 Test

    All these were normal yet my symptoms don’t seem to abate.

    Do you think I could also have Celiac Disase or Gluten Intolerance. I drink a lot of Coffee with milk. I plan to stop that and see how it goes.

    Please advice and help me

    Thanks,
    Rammy

  46. Deborah Turner Fryer says

    I have just discovered this year I have gluten intolerance and can’t wait to hear the rest of your story. I believe this is generational and also linked to chronic mental illness that runs throughout my family.

  47. Brinly says

    I too would like to hear more. I know how difficult it is to write with children ( I have 4), but if you can manage it, we would all love to read some highlights. My journey is perhaps unusual… Felt led by G-d o eat gluten free about a year ago, but still don’t know why. Digestion is much better overall, and I always have probs w an umbilical hernia (hoping to heal that) if I have gluten. Gluten w dairy seems worse than either alone. Felt tonight that I will be able to have it again some day after I heal from whatever is the issue, and googled it. That’s how I found your story. Thank you for sharing it and may you be a blessing.

  48. says

    hi, while I am hopeful and inspired…. I am still looking for “part 2″ you have stated that you had it, made that clear… but have given no “instruction” on how you cured it. As someone who has recently become “wheat intollerant” I am VERY anxious to know how you did this….

    I know you may think no one reads this and ergo updating isn’t really important…and in light of a new life (congratulations by the way!!!) I know it isn’t. But for those of us who google “how to cure wheat intollerance” and you’re number 3 on the list…. I would LOVE for this to be complete!

    THank yoU!!

  49. Vickie says

    Thank you for sharing your story.My son is 16 yrs.He has been throwing up for over 3 mths. now.It took the doctors a long time to come up with gastroparesis, the antibiotics did not work and now they say he ha celiac.He still vomits even though he eats gluten fri.He lost 25 lbs. in 3 mths.He has gerd, milk and nuts allergy also.He is getting weaker because he cannot keep food down. We even tried acupuncture.He has a lot of pain in the chest and throat just before he throws up.Can anyone tell me if this sounds like celiac.It is unbearable for me or anyone to watch their child suffer like this.I don’t know what more to do.Please help.Thank you.

    • Julia says

      Vickie,
      That does not sound like Celiac specifically but your son may have other complications happeing with Celiac. I would recommend Dr. Matsen, of the Northshore Naturopathic Clinic. He has helped many people with odd problems that are related to digestion. Things regular physicians cannot figure out – or do not have the time or testing to do so. I believe you could find help there to solve the problem.

      Good luck
      Julia

  50. Vickie says

    Hello Julia,
    Thank you very much for taking the time to write to me.I really appreciate the info.Thanks again.

    Vickie.

    • Julia says

      Vickie,
      You are never alone as much as it feels like it when these types of crisis happen. There will always be someone out there to share with or lend a hand. I hope you will find a solution to the problem and your son restored to full health and strength.

      Julia

  51. Shivam says

    Hi I’m still looking for part 2. Please do write. I’m very curious to find out the ‘instructions’. I watched the Bruce Lipton video and I believe in it but not sure what to do in order to cure my intolerances.

  52. Grace says

    Hi there Crystal,
    I was so excited to find your site, since I’m just beginning my GF journey… but I couldn’t find a link to the “rest of the story,” where you talk about how you were able to re-introduce gluten-containing foods into your diet.

    Do you have this story in email format? Or on another website? Please share with me how to read it.

    Thanks so much!

  53. Cameron says

    Hi Crystal, Thank you so much for taking the time to write your story! I am so appreciative! I am new at searching for the right “diet” to cure CD, so all I am aware of, as of yet, is the GAPS diet. Please, I hope this is not the only way!!? I am anxiously hoping to find a “cure” diet that does not entail boiling animal bone so that I can bash it and break it against a wooden cutting board, all so that I can then scrape the bone marrow out! I sure do hope I do not have to do this.

    Congratulations on your baby!!! I am so, so, so, so happy for you that you healed yourself before you had your child! The pain, fatigue, and depression from CD, robs you of your Joy and Motherly Spirit.

    When you have time, I would be so greatly appreciative of any information that can lead me in the right direction for a better diet plan.

    Again, thank you so much for your caring spirit and the time you have already given to us!

    • Cameron says

      Hello to all who are anxiously waiting for Crystal’s updated Blog,

      I received a reply e-mail from her that lead me to her husband’s website http://www.vancouvernutritionist.com

      I have read everything given from this website and it looks to be very promising!!! Because I do not live in Vancouver, I live in Oklahoma, I will have to figure out who and if there is a “who” … who practices the same method(s).

      I am excited to start eating dandelions, kiwis, wild salmon (if I can find an uncontaminated source), Unpasteurized Sauerkraut, and then I already cook and lather in Coconut Oil. I suppose I need to start taking spoonfuls of it though? These are 5 foods recommended on this website to reduce allergies.

      If and when any of you find more helpful information re: our health and CD or Gluten Intolerance, please post it here!

  54. Linda says

    I have been in pain for the last seven weeks I mean severe abdominal pain and i wasn’t able to eat modt of the food only steamed ptato and carrot my doctor checked every thing and after so many blood test she found that I have gluten intolerance and I have to go gluten free all my life , I’m now 46 years old and I’ve been eating wheat and all kind of food all my life with no problems only I had sometimes bad digestion and too much burbing that the food was coming out of my mouth specially when I have upset stomach . I still not conviced that this is the problem I would like to know your opinion please. I really feel helpless and desperate .

    • Cameron says

      Hi Linda, I feel for you! I too had abdominal pain and I believe it would have gotten as bad as it got for you, if I had not gone gluten free as soon as I did. This past July I went to the emergency room because of 2 weeks of abdominal pain. Prior to the abdominal pain, I had been trying to figure out why I was always so weak and fatigued. My heart was so unhealthy too. The doctors were frustratingly unhelpful. All of my blood work and X-rays came back as normal.

      When I went to the emergency room in July, I thought I might have ovarian cancer. They did an ultrasound of various organs and found no cause for concern. With the symptoms I described to them, they concluded I probably had IBS and scheduled me for a colonoscopy.

      I already knew though, that if I did not have cancer, I was next going to try going gluten free for 2 weeks to see if I had any positive results. Every time I googled my symptoms, abdominal cancer or celiac disease would pop up.

      I had been so extremely unhealthy for 7 ½ years so I was very doubtful that simply eliminating gluten from my diet would cure all my problems but I had to at least try it!

      Well it DOES WORK!!! It is now November and I am still in the process of healing BUT I AM HEALING!!! I feel so good more of the time than not which is a major contrast to my life from before.

      After doing so much research (I will always continue to do research) I have realized that I should stay away from dairy for at least 9 months after going gluten free. I stay away from soy products as well unless it is fermented. Soy has also been shown to be a problem for celiac sufferers.

      I hate to throw too much at you at once but you might want to research MSG and Aspertame as well, if you have not already. They are horrible for us and MSG can still be in the ingredients of products that say they have no MSG. MSG can be disguised by names such as, natural flavors, spice, yeast extract, and a few others that I cannot recall at the moment.

      MSG and Aspertame are neurotoxins. We need to detox our bodies of these and all the others toxins we ingest, absorb, consume. I have been juicing! Juicing leaves me feeling full and so very good . . . after a couple of days. : )

      Anyway, it was advised to go gluten free for 2 weeks. If gluten is a problem for you, you will probably notice a positive difference in your health. You also have to be cautious of foods that say they are “gluten free” but have oatmeal, corn, soy, and some others that will still cause inflammation in some people. (sorry)

      I also am now, after reading Crystal’s blog, very hopeful that there is a way for curing Celiac Disease/Gluten Intolerance! Crystal’s blog and her husband have been very helpful. On Youtube, I have watched a lecture with Dr. Bruce Lipton and Dr. Rob Williams and I have taken in a lot of wisdom from them.

      I will try to post all the video links that have helped me. I have been sending them to my loved ones in an e-mail.

      I hope this has been helpful!

  55. Michael C says

    Thank you for sharing your story. There are many with similar issues (including myself) and I have confidence that it is possible to resolve them in ways that you were describing. Your story parallels mine in many ways. I have had IBS/dairy/gluten issues for a long time but have only recently slowly started to recognize and understand them. After increasingly distressing GI problems, largely due to increased stress, I started to cut dairy out some time ago but just started on a gluten-free diet the past few weeks. I’ve already noticed a BIG change, and I am hopeful that eventually I can get back to a normal diet!

  56. Karen Givner says

    Thank you sooooo much. I’m 63 yrs old n have been sick for years. I too thought it was gluten but shrugged it off. After losing both my parents n experiencing no income it’s been even tougher. But I am off gluten but ingest unknowingly bits. It helped to know it takes weeks to get rid of just a little. I shake. That bothers me a lot n sore throat. I have sinus too. But I just wanted u to know your writing was the most encouraging yet. Thanks soooo much

  57. Ann Shepherd says

    Dear Crystal,

    Thanks so very much for sharing your inspirational story of hope and healing! I have a loved one who suffers from CD and would love to copy your methodologies if possible.

    I know what it’s like to suffer from chronic pain and misdiagnosis. I sustained a spinal injury almost five years ago that also caused three other injuries that until very recently had been undiagnosed.

    Thanks to biocranial sacral massage, an awesome massage therapist and my own familiarity with my body, we have been able to now treat the other injuries as well. Biocranial sacral massage works with the body’s lymphatic system to help heal traumatized areas of the body. It’s very powerful and I have to wonder how it would also do for CD patients since it sounds like 85% of CD folks start their journey through a traumatic event?

    I so look forward to your next posting.

    Thank you and God bless,

    Ann

  58. Leona says

    Hi there! Congrats on your new baby! I am sure she is keeping you busy. I was wondering if you ever finished the posts about becoming free from gluten intolerance? This post has given me so much hope as well as the video posting with Dr. Lipton.

  59. says

    Bella this is soo exciting!! Please contact me if you’re willing, this has been my belief for a long time and I’ve been patiently awaiting a vehicle to further my journey back to balance and homeostasis. I sent you a PM on FB.

  60. Youssef says

    Hello,

    It’s a nice peace of writing and nice experience to cure from celiac disease. I’ve been diagnosed by a docter due i’m diabetic and the (Fe iron) in my blood was to low. So i did a biopsy of my intestine with a positive result. It was a huge shock i felt anger cause i already had diabetic but with diabetic i’ve managed to live perfectl cause i do a lot of sports, but whitout normal bread, cookies, … it’s realy a disaster. I do not have any symptons of CD if i’m eating normal bread with gluten or cookies,…. Nothing no pain, realy nothing, i do not vomiting, maybe little bit tired sometimes but i don’t sleap every night 7hours. So now i’m doing a diet of glutefree and i have pain in my stomache, maybe it’s the beginning of the dieet so my intestine and stomache have to addapt to the food???
    Anyone expercience with this symtoms???
    Best Regards Youssef

  61. Urban says

    Truely inspiring! Since i have CD myself i recognise much in your story… theese days you have to be your own doctor thanks to internet.

    Im from Sweden and we have the same crappy doctor experience. Or well not the doctors fault, it is a tuff deceice to figure out. Took me 15 years..

    Can’t wait for part 2, can you please update us with reference material you have on how this works? Or point us in the right direction in any way? I tried to google myself (which im usually good at) but cant find anything close.

    I beleive it is complicated materials but 20 URL’s would do fine too.. :)

    Even if it didnt work out please let us know. Sometimes you are better off with 4 eyes.

    Also to everyone with CD. Spectrazyme helped me (No cure but a releaf). As well as gallbladder cleanses (Google it, no cure but common for people with CD.)

    /Urban

  62. Robin says

    I appreciate your articles. I >think< I may have healed my gluten intolerance, too, but I'm afraid to try a challenge. I have been working on stomach acid, methylation and pyroluria (a zinc and B6 deficiency condition).
    I hope you do decide to finish your story.
    Oh, by the way, I LOVE Dr Lipton's videos. He is phenomenal!

  63. Stephanie says

    I just found your blog and would love to hear the rest of your story!

    Ps our littles are 4 days apart. My Rio was born 6/4 after 12 hours of labor, completely natural and we didn’t know the sex either. :)

  64. says

    March 2013 Update: I’m WAY busier than I expected to be with my 9 month old daughter and running my business. I haven’t been able to find the time to sit, reflect and write about my experience of healing my gluten intolerance yet and had no idea at the time I wrote this post that it would take this long. Please understand that I WANT to share my story with you, I just need to prioritize my time right now and baby Madison is my first priority. I am celebrating 3 years of being able to re-introduce gluten into my diet this month. If it were as easy as telling you to do A. B. C. then I’d just post it but it wasn’t that easy. It took years to to get to where I am today, healthy and thriving with NO food allergies, sensitivities or intolerances for the first time in my life. I can promise you that I’ll share the rest of my story, I just can’t make any promises as to WHEN I’ll be able to do it. I’m sure life with a new baby will settle down at some point and I’ll be able to return to writing and blogging. Thank you for your patience and I apologize for not being able to respond to each comment right now.
    Crystal – Prenatal Coach recently posted: The Conscious Birth of Madison Rose – Intervention-Free Home Water Birth | PART THREE | A Father’s Perspective

    • Shazi says

      Hi I just read Ur story about the journey of gluten intolerance and how u get rid ! Congrats ! Actually I am worry a lots coz my baby has gluten allergy and she is only 17 months old’ she is my first baby and she is too much ill, here lack of awareness of this problem even doctors nt treating rightly my baby ‘ I m depressed slots about her pls guide me what I do for her’ waiting Ur reply!

  65. Urban says

    Good news! I will be exited to read once you make the time for this.

    Life can be busy and family comes first, i agree on that but please share this somehow. I’ll happily buy your book and think many others will too…

    Or send me the material and i’ll write the book for you?

    Best regard
    Urban

  66. Courtney says

    Thanks for posting!! I’m an 18 year old whose experienced the same symptoms and am currently waiting for test results regarding C.D., this provided a lot of helpful information, thank you!

  67. Margo Charbonneau says

    I too would love to hear the continuation of your journey. I have had vitiligo, an autoimmune disease for 30 years. I began eating a paleo autoimmune diet and then after 3 months continued with a paleo diet for 8 months now. My vitiligo is almost gone! I would love to think that I would not have to eat such a restrictive diet for the rest of my life……but if I do……then it’s worth it! Your story is inspiring and I wish you continued good health.

  68. says

    I’ve suffered for the last 2 years with severe gluten intolerance but had cut it out already so can’t have the IGA coeliac test. Following reading this article and an amazing book by Andreas Moritz, I’ve researched more and found a DNA testing facility and sent off for a genetic predisposition test kit which will rule out whether I could possibly be coeliac without having to go through eating gluten again.

    Fingers-crossed this will give me the answers!

    Info on Genetic testing from the Coeliac UK website:

    More than 90% of people with coeliac disease have HLA DQ2 and HLA DQ8 genes compared to 30% of the general population.

    Although genetic testing cannot be used to diagnose coeliac disease as the associated genes are also present in people without coeliac disease, there is a role for genetic testing in eliminating uncertainties around diagnosis.

    In adults, genetic testing is not routinely carried out but may be used to rule out coeliac disease, as if you do not have the associated genes, you are unlikely to have coeliac disease.

    I hope this is helpful to other people.

    Kat x

  69. Amber says

    I would love to hear more about how you’ve done this! I understand it probably isn’t a cure, but I would like to be able to try something to help with my gluten intolerance symptoms.

  70. Han says

    Hi Crystal

    Thank you for your story. May I get your permission to translate in Chinese and post it in China. It will be a great

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