Prenatal Coach Rotating Header Image

How I Healed My Gluten Intolerance – Part 1

Just over a month ago I worked up the courage to announce some big news… I’ve successfully been able to heal my body and re-introduce gluten into my diet! (This is a HUGE goal that I was set on achieving before starting a family.) If you haven’t read the intro to my story yet, that’s a great place to start as it contains some really important points that I won’t be repeating here. Within hours of hitting ‘publish’ I received an overwhelming amount of love and support. I feel very grateful to have such a strong community of people around me that believe deeply in the body’s ability to heal itself. Thank you for your encouragement, it has helped me find the strength to continue sharing my story despite the negative feedback I’ve received from those who are not yet ready to have their deeply held beliefs challenged.

Ironically, I can truly relate to these people because I used to be one of them. I distinctly remember having a conversation with one of my classmates at the Canadian School of Natural Nutrition back in 2005. The topic of Celiac Disease came up and she very boldly stated that she didn’t believe that CD was incurable and that it was indeed possible for the body to heal itself. I remember getting really angry and felt my blood starting to boil. While I kept my cool externally, internally I was MAD. All I could think of was, “How dare she say that? Who does she think she is? Clearly she doesn’t understand how serious and real Celiac Disease is!” Today, I need to find and thank that woman because SHE had the courage to speak HER truth and it planted a seed in my mind that maybe Celiac Disease wasn’t forever. While I didn’t know it at the time, THAT was the start of my healing journey even though I hadn’t even received a diagnosis yet.

thank you note for every language
Creative Commons License photo credit: woodleywonderworks

 

I’ve decided to break my journey up into segments, which will make it a lot easier for me to write, and hopefully a lot shorter for you to read! I’ve determined that the best place for me to start is at the very beginning… sharing what my life was like before being diagnosed with Celiac Disease. Since I’m still very passionate and knowledgeable about the topic despite the fact that I can now eat gluten it’s my hope that this information will spread far and wide to help increase the diagnosis rate of Celiac Disease. It’s still a very real and serious condition that is grossly under-diagnosed and it’s very necessary to eat 100% gluten-free for a period of time (for most that will be forever) in order to help your body heal and break the cycle of inflammation and damage to the villi on your small intestine. As I mentioned in my previous post this is not a case of simply removing gluten from my diet and after a period of time being able to re-introduce it without any ill effects and just ‘thinking’ I am healed. I went through a much deeper healing process and want to be very clear that I do not recommend that anyone who has been diagnosed with CD eat gluten (even if they don’t feel any noticeable effects, because you could still be damaging your small intestine.) This post also warrants a reminder to my readers that I am not claiming to have found the cure for Celiac Disease or gluten sensitivity; I am simply sharing my personal journey. Okay, enough with the disclaimers and onto my story…

My Childhood and Adolescent Years

I could easily write a book about my health challenges through this period in my life but for the purposes of this blog post, I’ll keep it short and sweet. Just enough to give you some background information but not enough to bore you ;) I spent the majority of my childhood and adolescent years in pain (physically and emotionally) and was often sick and unwell. I can’t remember exactly when it started because I have no memories of feeling healthy but I’ve been told that things started to shift for me around the time that my parents got divorced when I was six years old. While I don’t consciously remember the experience my family told me that I was very upset and like a typical child thought it was me that had done something wrong and caused the break up. It’s clear to me that this has nothing to do with my parents and everything to do with how I responded to their divorce as a young child. The separation was in the best interest of everyone and I place no blame on any outside sources for any of my life experiences. As a child who was nicknamed a ‘worry wart’ and felt excessively stressed all the time, it is interesting to note that the anger, sadness and grief I felt after the divorce was internalized and held within my body… not surprisingly, shortly after that my frequent stomach aches began. The stomach aches progressively turned into excruciating stomach pains, which there was no apparent medical cause for and I eventually received a diagnosis of IBS or Irritable Bowel Syndrome since nothing else was found to be ‘wrong’ with me. (I’ve read that 1/3 of Celiac Disease patients have been previously diagnosed with IBS.)

Growing up in an Italian family, wheat and dairy was eaten at every meal. Cereal with milk for breakfast, sandwiches for lunch and pasta with cheese for dinner. While I won’t be going into detail, I will simply say that mealtimes were the most stressful time of the day for me as a child. Knowing what I know now (and what my parents didn’t know at the time) Stress + Ingestion of Food = Poor Digestion. It makes perfect sense to me that I went on to develop an intolerance to both gluten and dairy. What started with frequent tummy aches, digestive problems and agonizing stomach pains as a child turned into bloating, fatigue, depression, brain fog, irritability and mood swings as a teenager and continued into my adult life. (85% of patients with Celiac Disease have a atypical, non-gastrointestinal symptom presentation.) At 15 I was diagnosed with clinical depression and given anti-depressants. They didn’t work for me and all came with a different set of horrible side effects. I decided they weren’t for me. Deep down inside I knew that it wasn’t normal for a 15 year old to be severely depressed. I then set out on a mission to read everything I could get my hands on that pertained to natural health, nutrition and alternative healing modalities. I was determined to find the cause of all my health complaints.

Testing and Diagnosis

When I learned about Celiac Disease and found that my symptoms fit the picture perfectly I went to my doctor and requested a blood test (TTG-IgA). When the test came back negative I was confused because I was sure this is what I had been suffering from. (Years later I discover that I have an IgA deficiency so this test is inconclusive, but not necessarily negative.) By this time I had already removed dairy from my diet but was still unwell. I decided a trial of the gluten-free diet was in order and removed it to the best of my ability. All of my gastrointestinal symptoms went away within days and I felt better than I had in years. I was convinced that I had figured out what was wrong with me. After a year of eating gluten-free and still suffering from depression and anxiety I became very confused and started to think that I had made a mistake and that gluten wasn’t the issue because my depression had not subsided on the gluten-free diet. I was living on my own at 16, working full-time and going to high school full-time while trying to manage a gluten and dairy-free diet on a small budget, in a small town where no one knew what gluten was. I re-introduced gluten and felt fine, my symptoms didn’t worsen or get better. I put the whole ‘gluten-free’ thing behind me and continued on with my life.

Fast forward to 2006. I’m nearing the end of my studies in holistic nutrition (which had a dual purpose, to learn more about how to heal my own health challenges and to start a career where I could help others with all the knowledge I had gained over the years) and we start learning more about Celiac Disease. A light bulb goes off in my head. Since re-introducing gluten into my diet when I was a teenager, slowly but surely all of my symptoms had returned over the course of the months and years that passed and I hadn’t noticed the connection. On top of that I was dealing with secondary issues from my body’s apparent lack of ability to absorb nutrients properly. Again, the profile of Celiac Disease seemed to fit, so I went to go see my doctor and requested the blood test (TTG-IgA). Weeks later when the test results were in, I was really disappointed to discover that it was negative because I was convinced that I had finally found the cause of all my symptoms after years of health challenges. (In North America, it takes an average of 10 years to receive a diagnosis of Celiac Disease from the first onset of typical symptoms.) This time I didn’t give up, I started to research Celiac Disease extensively and learned that if you have an IgA deficiency then the blood test will be inconclusive (ie. even if you have CD it will come back negative.) I went back to my doctor and requested a Total IgA blood test… not surprisingly it showed that I had an IgA deficiency! (Immunoglobulin A or IgA is 10 to 15 times more common in patients with CD than in healthy individuals.)

The next step to getting a Celiac diagnosis (in most circumstances) is to be referred to a gastroenterologist for a biopsy of the small intestine to assess whether or not there is any visible damage to the villi, the tiny, hair-like projections that line the small intestine allowing nutrients from food to be absorbed. When people with Celiac Disease consume gluten, the villi become damaged and a person becomes malnourished, no matter how much food they eat. While this is the ‘gold standard’ for diagnosis, it can also provide false negatives if the few portions they remove to observe under a microscope are not damaged but other parts of the intestine are. Unfortunately, getting diagnosed with Celiac Disease isn’t black and white, they are many shades of grey since false negatives (and false positives, when it comes to blood testing) is possible.

I was referred to a gastroenterologist and had to wait 3 months for my consultation appointment while continuing to poison myself by eating regular amounts of gluten. (If you stop consuming gluten your intestines will heal and the biopsy will be inconclusive.) After my consultation, I’d have to then wait for a surgery date. While I recommend that clients get the biopsy so they have ‘proof’ that they have Celiac Disease in order to adhere to a 100% gluten-free diet, I struggled with the decision for myself. For one I KNEW that I had Celiac Disease and by this point I was so sick and so depressed that I was afraid I might not make it another 3 months (yes, I was THAT depressed and they couldn’t schedule me in any earlier.) Second, it’s an invasive procedure, albeit with only small risks but I was still uncomfortable with it. The biopsy would prove to the DOCTOR that I had Celiac Disease, not to myself.

On February 14, 2007 I went completely gluten-free. This was months before I received my diagnosis because I was so ill that I couldn’t leave the house and I was unable to follow through with my Valentine’s Day plans. I had reached my breaking point; I decided on that day, that with or without a diagnosis, I was committed to following a gluten-free diet for life.

Gluten Free Aisle
Creative Commons License photo credit: Whatsername?

 

Within days of removing 100% of the gluten from my diet I noticed a huge improvement. Within weeks I felt better then I had in my life and within a few months I was nearly free of ALL my symptoms. I felt like a completely different person. I remained healthy and happy as long as I adhered to a 100% gluten-free diet. Any amount of cross-contamination (I’m talking a fraction of a bread crumb here) would cause a debilitating return of my symptoms and the effects would last up to 2 weeks. I finally understood why I didn’t experience relief from my depression the first time I went gluten-free for a year when I was a teenager. It’s because I was not 100% gluten-free! I was probably really close but that wasn’t enough. Being trained as a nutritionist and having studied Celiac Disease I was now able to look back and see that even though I was doing my absolute best, I was still getting very minute amounts of gluten in my diet and that was triggering me. When I learned this time around that even a tiny amount of gluten would cause symptoms for up to 2 weeks it made sense that I had struggled with depression almost non-stop that whole year I was gluten-free. This provided a huge amount of insight for me, because I had known years ago, that gluten was an issue but since testing couldn’t prove it, I questioned my intuition.

I returned to my doctor and shared with her how I felt on a 100% gluten-free diet and what would happen if I consumed a small amount. It truly felt like I had experienced a miraculous recovery. Since I was no longer a candidate for a biopsy as I was already gluten-free, I requested a gene test to determine whether or not I carried one or both of the two genes (HLA-DQ2 and/or HLA-DQ8) associated with Celiac Disease. This test is not affected by a gluten-free diet.

Here is some background information on gene testing from Dr. Alessio Fasano, who is the director of the Center for Celiac Research:

“Celiac disease (CD) is an immune-mediated disease of the intestines that is triggered by the ingestion of gluten in genetically susceptible individuals. Gluten is the major protein component of wheat, rye, and barley. Genetic predisposition plays a key role in CD and considerable progress has been made recently in identifying genes that are responsible for CD predisposition. It is well known that CD is strongly associated with specific HLA class II genes known as HLA-DQ2 and HLA-DQ8 located on chromosome 6p21. Approximately 95% of CD patients express HLA-DQ2, and the remaining patients are usually HLA-DQ8 positive. However, the HLA-DQ2 allele is common and is carried by approximately 30% of Caucasian individuals. Thus, HLA-DQ2 or HLA-DQ8 is necessary for disease development but is not sufficient for disease development; its estimated risk effect is only 36-53%.”

I carry the HLA-DQ2 gene.

Let’s break this down even further, in plain English… Celiac Disease is genetic, meaning it runs in families. Approximately 30% of Caucasian individuals carry the HLA-DQ2 gene but not all of them will go on to develop CD therefore genetic testing alone cannot be used to diagnose Celiac. It can however, be used to rule it out. What is important to note is that an individual can carry this gene and NEVER go on to develop CD in their lifetime OR they will carry the gene and it becomes triggered at some point in their life (after surgery, pregnancy, childbirth, viral infection or severe emotional stress such as divorce, death of a loved one etc.) and they develop Celiac Disease at that point in their life. Of those that are diagnosed with Celiac Disease (presumably by a positive biopsy test) approximately 95% carry the HLA-DQ2 gene.

Sound confusing? The road to a clear diagnosis is for most people. That’s probably one of the reasons why the Canadian Celiac Association reports that the prevalence of Celiac Disease is approximately 1:100 in the North American population and approximately 97% of individuals with Celiac Disease are undiagnosed. With an incredibly low 3% diagnosis rate, CD is one of the most under diagnosed diseases in North American today. This has led to the metaphor that diagnosed Celiacs represent only the visible tip of a much larger undiagnosed iceberg.

My Diagnosis

My blood test for CD was inconclusive due to an IgA deficiency. A biopsy would have also been inconclusive because I had already removed gluten from my diet. The ‘gold standard’ for diagnosis was no longer possible.

Based on the fact that I carry the gene associated with Celiac Disease, my symptoms started after experiencing severe emotional stress as a child (increasing the probability of the gene being triggered), having typical and atypical signs and symptoms of CD which dramatically cleared up on a gluten-free diet and returned with a ‘gluten challenge’ my doctor diagnosed me with Celiac Disease and advised me to adhere to a gluten-free diet for life.

Why am I giving you so much background information?

Because the Canadian Celiac Association does not recognize my diagnosis as ‘official’ (even though my doctor gave it to me) so I want to lay all my cards on the table, face up so that there is no confusion or misrepresentation. I am fully aware that having a positive biopsy is the ‘gold standard’ for diagnosis but my doctor thought otherwise, based on MY individual case, which I greatly appreciated after years of being misdiagnosed.

At the same time I can appreciate how one could argue that maybe I never had Celiac Disease to begin with and that it was simply an allergy or sensitivity to gluten that I ‘grew out of.’ While I agree that I may never have had the intestinal damage to begin with (I’ll never know for sure), I disagree that it was simply an allergy that I grew out of. This is something that I had to work extremely hard at, which I’ll explain in further detail in another post. I will never be able to prove with 100% certainty (by medical standards) that I had intestinal damage that accompanied all my symptoms (and I don’t intend to allow it to come back just to prove my point.) It was clear to me and to my doctor that my body was suffering from malnutrition, likely from malabsorption and that I wasn’t suffering from a classic IgE mediated allergy. What cannot be argued is that for the 3 years I was 100% gluten-free, I would react very strongly to gluten (right up until I ate gluten one day with no ill effects). I have experienced a major breakthrough in my health!

“Whether you think you can, or you think you can’t – you’re right.” ~Henry Ford

I also understand and appreciate how one could believe that healing Celiac Disease and being able to eat gluten without intestinal damage is impossible because it’s an “incurable” disease, but I have to disagree. The field of science called epigenetics is teaching us that your DNA doesn’t predict your destiny. It’s showing us that genes can essentially be turned “off” just as the gene can be triggered to turn “on” (Remember I mentioned earlier in my post how you can carry the celiac gene and either never go on to develop CD or you can carry the gene and it becomes triggered at some point your life – after surgery, infection, severe emotional stress etc. and you develop CD.) Since your internal and external environment determines which of your genes will be expressed I always wondered if the Celiac gene can be triggered to turn on, why can’t it be triggered to turn off? (I highly recommend watching this video explanation of ONE component of epigenetics, the power of your thoughts and beliefs, by Dr. Bruce Lipton.) I believe that my Celiac gene is no longer expressing itself and THAT is why it’s possible for me to eat gluten again. In short, I believe that I have brought my body back into homeostasis, where illness and disease is no longer able to thrive and this new, healthy environment doesn’t allow the celiac gene to express itself anymore (which took me over 3 years to accomplish.) I am not however, claiming to have found the cure for Celiac Disease. I am simply sharing my experience, detailing what it took to bring MY body back into homeostasis so it’s full health potential could be expressed. This journey will be different for everyone. I can’t and won’t be creating a protocol that everyone can follow to achieve the same results! This is a HUGE topic and one I’m not going to delve into right now because I’ll cover it in future posts. In the meantime, if you’d like more information I highly recommend reading ‘The Biology of Belief’ by Dr. Bruce Lipton. That’s a great place to start if you want to learn about the science behind epigenetics. Having the opportunity to meet and listen to Dr. Lipton in 2009 literally changed my life.

If you’ve made it this far, thank you so much for reading!

It has taken me over a month (since writing my last post) to work up the courage to continue sharing my story. The love and support you’ve shown me has been overwhelmingly positive and has encouraged me to continue sharing my journey, one post at a time. As you can imagine there is SO much more left to tell you…

March 2013 Update: I’m WAY busier than I expected to be with my 9 month old daughter and running my business. I haven’t been able to find the time to sit, reflect and write about my experience of healing my gluten intolerance yet and had no idea at the time I wrote this post that it would take this long. Please understand that I WANT to share my story with you, I just need to prioritize my time right now and baby Madison is my first priority. I am celebrating 3 years of being able to re-introduce gluten into my diet this month. If it were as easy as telling you to do A. B. C. then I’d just post it but it wasn’t that easy. It took years to to get to where I am today, healthy and thriving with NO food allergies, sensitivities or intolerances for the first time in my life. I can promise you that I’ll share the rest of my story, I just can’t make any promises as to WHEN I’ll be able to do it. I’m sure life with a new baby will settle down at some point and I’ll be able to return to writing and blogging. Thank you for your patience and I apologize for not being able to respond to each comment right now.

October 2013 Update: PART TWO is now available!

   

100 Comments

  1. Brad Mathews says:

    Just a polite nudge for the rest of the story on how you actually accomplished this feat. Inquiring minds, and three generations of my family, would love to know!

    Thanks!
    Brad Mathews recently posted: The 1 Billion Candle-Power Sunshine Law

  2. Deb says:

    Please write more about how you cured your CD. My son is only 6 and has either gluten intolerance or CD. We have never received a diagnosis, but the first time I fed him bread he started screaming in pain within a few minutes. We recently tried to introduce gluten, but he went from very healthy to becoming extremely ill with pneumonia 3 times in less than 3 months (the last episode he had strep throat and bronchospasms along with the pneumonia and could barely breathe).

    We are vegan because of our religious beliefs and he is allergic to nuts so his diet is VERY limited. I would love to be able to have him eat gluten. Please publish the rest of your story as it would be helpful to so many people!

  3. Gina says:

    Thank you for writing this. Will you post Part 2 soon? I became very gluten intolerant last year and I am trying to heal my body to prepare for having a baby, but I’m not sure what to do other than take probiotics. I know this is curable for me and that my body is out of balance right now. I would love to hear about the strategies you used; this is not talked about nearly enough. Thank you!

  4. Christy says:

    Your whole blog seems to be such an inspiration to many people! I am allergic to gluten along with dairy and soy because of the damage originally from the gluten and I’m only 18 :/
    I would absolutely love if you could share the rest of your story! I really don’t want to be stuck with this allergy for life and I having somewhere to start on how to recover would be like a dream!

    Any way congratulations with your first baby :D and I’m sure shes beautiful.
    I may even try the no shampoo thing because it sounds like a great idea.

    Thanks for sharing your story!

  5. Hi Crystal,

    That was an amazing post and I can’t wait to hear more. My best friend has really struggled with so many similar issues for diagnosing etc – it’s a real challenge. I look forward to hearing more…and I love all the details. Thanks for sharing!

    :) Gabrielle

  6. Nims says:

    Hi Crystal,

    I read your post and it is really inspiring to know how you got your self back to the norm. I would greatly appreciate if you can provide as many details as possible. You can help many others get back to the norm with your experience. Thanks a lot for Sharing your experience.. Looking forward to your second post with more details..

    Nims.. :)

  7. Cheri says:

    I too am looking for the rest of the story. It looks like this was written over 18 months ago. Would love for you to continue your story :)

  8. Rammy says:

    Hi,
    Your story is so inspiring. I have suffered for more than 8 years from the following issues:

    Abdominal Discomfort
    Excess flatulence
    Diarrhea on and off or frequent bowel movements in a day
    Fatigue and lethargy
    Muscle weakness
    No fever or getting bed ridden
    Lactose Intolerant
    Excess Hunger and excess weight loss

    All doctors are saying it is psychological but I have no stress in work
    I did the following tests and everything was normal.

    Liver Function test
    ESR
    Thyroid
    Diabetes
    Tuberculosis
    CT Scans
    Stool and Urine examination
    Ultrasound
    Creatinine test
    Blood Count
    Vitamin B12 Test

    All these were normal yet my symptoms don’t seem to abate.

    Do you think I could also have Celiac Disase or Gluten Intolerance. I drink a lot of Coffee with milk. I plan to stop that and see how it goes.

    Please advice and help me

    Thanks,
    Rammy

  9. Deborah Turner Fryer says:

    I have just discovered this year I have gluten intolerance and can’t wait to hear the rest of your story. I believe this is generational and also linked to chronic mental illness that runs throughout my family.

  10. Brinly says:

    I too would like to hear more. I know how difficult it is to write with children ( I have 4), but if you can manage it, we would all love to read some highlights. My journey is perhaps unusual… Felt led by G-d o eat gluten free about a year ago, but still don’t know why. Digestion is much better overall, and I always have probs w an umbilical hernia (hoping to heal that) if I have gluten. Gluten w dairy seems worse than either alone. Felt tonight that I will be able to have it again some day after I heal from whatever is the issue, and googled it. That’s how I found your story. Thank you for sharing it and may you be a blessing.

  11. Brinly says:

    Deborah- I have mental illness in my fam too (My parents generation and before) and would love to connect re gluten intolerance. If you are open for discussion, please contact me at standridgefamily@gmail.com.-Brinly

  12. alexandra says:

    hi, while I am hopeful and inspired…. I am still looking for “part 2″ you have stated that you had it, made that clear… but have given no “instruction” on how you cured it. As someone who has recently become “wheat intollerant” I am VERY anxious to know how you did this….

    I know you may think no one reads this and ergo updating isn’t really important…and in light of a new life (congratulations by the way!!!) I know it isn’t. But for those of us who google “how to cure wheat intollerance” and you’re number 3 on the list…. I would LOVE for this to be complete!

    THank yoU!!

  13. Vickie says:

    Thank you for sharing your story.My son is 16 yrs.He has been throwing up for over 3 mths. now.It took the doctors a long time to come up with gastroparesis, the antibiotics did not work and now they say he ha celiac.He still vomits even though he eats gluten fri.He lost 25 lbs. in 3 mths.He has gerd, milk and nuts allergy also.He is getting weaker because he cannot keep food down. We even tried acupuncture.He has a lot of pain in the chest and throat just before he throws up.Can anyone tell me if this sounds like celiac.It is unbearable for me or anyone to watch their child suffer like this.I don’t know what more to do.Please help.Thank you.

    1. Julia says:

      Vickie,
      That does not sound like Celiac specifically but your son may have other complications happeing with Celiac. I would recommend Dr. Matsen, of the Northshore Naturopathic Clinic. He has helped many people with odd problems that are related to digestion. Things regular physicians cannot figure out – or do not have the time or testing to do so. I believe you could find help there to solve the problem.

      Good luck
      Julia

  14. Vickie says:

    Hello Julia,
    Thank you very much for taking the time to write to me.I really appreciate the info.Thanks again.

    Vickie.

    1. Julia says:

      Vickie,
      You are never alone as much as it feels like it when these types of crisis happen. There will always be someone out there to share with or lend a hand. I hope you will find a solution to the problem and your son restored to full health and strength.

      Julia

  15. Shivam says:

    Hi I’m still looking for part 2. Please do write. I’m very curious to find out the ‘instructions’. I watched the Bruce Lipton video and I believe in it but not sure what to do in order to cure my intolerances.

  16. Grace says:

    Hi there Crystal,
    I was so excited to find your site, since I’m just beginning my GF journey… but I couldn’t find a link to the “rest of the story,” where you talk about how you were able to re-introduce gluten-containing foods into your diet.

    Do you have this story in email format? Or on another website? Please share with me how to read it.

    Thanks so much!

  17. Cameron says:

    Hi Crystal, Thank you so much for taking the time to write your story! I am so appreciative! I am new at searching for the right “diet” to cure CD, so all I am aware of, as of yet, is the GAPS diet. Please, I hope this is not the only way!!? I am anxiously hoping to find a “cure” diet that does not entail boiling animal bone so that I can bash it and break it against a wooden cutting board, all so that I can then scrape the bone marrow out! I sure do hope I do not have to do this.

    Congratulations on your baby!!! I am so, so, so, so happy for you that you healed yourself before you had your child! The pain, fatigue, and depression from CD, robs you of your Joy and Motherly Spirit.

    When you have time, I would be so greatly appreciative of any information that can lead me in the right direction for a better diet plan.

    Again, thank you so much for your caring spirit and the time you have already given to us!

    1. Cameron says:

      Hello to all who are anxiously waiting for Crystal’s updated Blog,

      I received a reply e-mail from her that lead me to her husband’s website http://www.vancouvernutritionist.com

      I have read everything given from this website and it looks to be very promising!!! Because I do not live in Vancouver, I live in Oklahoma, I will have to figure out who and if there is a “who” … who practices the same method(s).

      I am excited to start eating dandelions, kiwis, wild salmon (if I can find an uncontaminated source), Unpasteurized Sauerkraut, and then I already cook and lather in Coconut Oil. I suppose I need to start taking spoonfuls of it though? These are 5 foods recommended on this website to reduce allergies.

      If and when any of you find more helpful information re: our health and CD or Gluten Intolerance, please post it here!

  18. Linda says:

    I have been in pain for the last seven weeks I mean severe abdominal pain and i wasn’t able to eat modt of the food only steamed ptato and carrot my doctor checked every thing and after so many blood test she found that I have gluten intolerance and I have to go gluten free all my life , I’m now 46 years old and I’ve been eating wheat and all kind of food all my life with no problems only I had sometimes bad digestion and too much burbing that the food was coming out of my mouth specially when I have upset stomach . I still not conviced that this is the problem I would like to know your opinion please. I really feel helpless and desperate .

    1. Cameron says:

      Hi Linda, I feel for you! I too had abdominal pain and I believe it would have gotten as bad as it got for you, if I had not gone gluten free as soon as I did. This past July I went to the emergency room because of 2 weeks of abdominal pain. Prior to the abdominal pain, I had been trying to figure out why I was always so weak and fatigued. My heart was so unhealthy too. The doctors were frustratingly unhelpful. All of my blood work and X-rays came back as normal.

      When I went to the emergency room in July, I thought I might have ovarian cancer. They did an ultrasound of various organs and found no cause for concern. With the symptoms I described to them, they concluded I probably had IBS and scheduled me for a colonoscopy.

      I already knew though, that if I did not have cancer, I was next going to try going gluten free for 2 weeks to see if I had any positive results. Every time I googled my symptoms, abdominal cancer or celiac disease would pop up.

      I had been so extremely unhealthy for 7 ½ years so I was very doubtful that simply eliminating gluten from my diet would cure all my problems but I had to at least try it!

      Well it DOES WORK!!! It is now November and I am still in the process of healing BUT I AM HEALING!!! I feel so good more of the time than not which is a major contrast to my life from before.

      After doing so much research (I will always continue to do research) I have realized that I should stay away from dairy for at least 9 months after going gluten free. I stay away from soy products as well unless it is fermented. Soy has also been shown to be a problem for celiac sufferers.

      I hate to throw too much at you at once but you might want to research MSG and Aspertame as well, if you have not already. They are horrible for us and MSG can still be in the ingredients of products that say they have no MSG. MSG can be disguised by names such as, natural flavors, spice, yeast extract, and a few others that I cannot recall at the moment.

      MSG and Aspertame are neurotoxins. We need to detox our bodies of these and all the others toxins we ingest, absorb, consume. I have been juicing! Juicing leaves me feeling full and so very good . . . after a couple of days. : )

      Anyway, it was advised to go gluten free for 2 weeks. If gluten is a problem for you, you will probably notice a positive difference in your health. You also have to be cautious of foods that say they are “gluten free” but have oatmeal, corn, soy, and some others that will still cause inflammation in some people. (sorry)

      I also am now, after reading Crystal’s blog, very hopeful that there is a way for curing Celiac Disease/Gluten Intolerance! Crystal’s blog and her husband have been very helpful. On Youtube, I have watched a lecture with Dr. Bruce Lipton and Dr. Rob Williams and I have taken in a lot of wisdom from them.

      I will try to post all the video links that have helped me. I have been sending them to my loved ones in an e-mail.

      I hope this has been helpful!

  19. Michael C says:

    Thank you for sharing your story. There are many with similar issues (including myself) and I have confidence that it is possible to resolve them in ways that you were describing. Your story parallels mine in many ways. I have had IBS/dairy/gluten issues for a long time but have only recently slowly started to recognize and understand them. After increasingly distressing GI problems, largely due to increased stress, I started to cut dairy out some time ago but just started on a gluten-free diet the past few weeks. I’ve already noticed a BIG change, and I am hopeful that eventually I can get back to a normal diet!

  20. Karen Givner says:

    Thank you sooooo much. I’m 63 yrs old n have been sick for years. I too thought it was gluten but shrugged it off. After losing both my parents n experiencing no income it’s been even tougher. But I am off gluten but ingest unknowingly bits. It helped to know it takes weeks to get rid of just a little. I shake. That bothers me a lot n sore throat. I have sinus too. But I just wanted u to know your writing was the most encouraging yet. Thanks soooo much

  21. Ann Shepherd says:

    Dear Crystal,

    Thanks so very much for sharing your inspirational story of hope and healing! I have a loved one who suffers from CD and would love to copy your methodologies if possible.

    I know what it’s like to suffer from chronic pain and misdiagnosis. I sustained a spinal injury almost five years ago that also caused three other injuries that until very recently had been undiagnosed.

    Thanks to biocranial sacral massage, an awesome massage therapist and my own familiarity with my body, we have been able to now treat the other injuries as well. Biocranial sacral massage works with the body’s lymphatic system to help heal traumatized areas of the body. It’s very powerful and I have to wonder how it would also do for CD patients since it sounds like 85% of CD folks start their journey through a traumatic event?

    I so look forward to your next posting.

    Thank you and God bless,

    Ann

  22. Leona says:

    Hi there! Congrats on your new baby! I am sure she is keeping you busy. I was wondering if you ever finished the posts about becoming free from gluten intolerance? This post has given me so much hope as well as the video posting with Dr. Lipton.

  23. Bella this is soo exciting!! Please contact me if you’re willing, this has been my belief for a long time and I’ve been patiently awaiting a vehicle to further my journey back to balance and homeostasis. I sent you a PM on FB.

  24. Youssef says:

    Hello,

    It’s a nice peace of writing and nice experience to cure from celiac disease. I’ve been diagnosed by a docter due i’m diabetic and the (Fe iron) in my blood was to low. So i did a biopsy of my intestine with a positive result. It was a huge shock i felt anger cause i already had diabetic but with diabetic i’ve managed to live perfectl cause i do a lot of sports, but whitout normal bread, cookies, … it’s realy a disaster. I do not have any symptons of CD if i’m eating normal bread with gluten or cookies,…. Nothing no pain, realy nothing, i do not vomiting, maybe little bit tired sometimes but i don’t sleap every night 7hours. So now i’m doing a diet of glutefree and i have pain in my stomache, maybe it’s the beginning of the dieet so my intestine and stomache have to addapt to the food???
    Anyone expercience with this symtoms???
    Best Regards Youssef

  25. Urban says:

    Truely inspiring! Since i have CD myself i recognise much in your story… theese days you have to be your own doctor thanks to internet.

    Im from Sweden and we have the same crappy doctor experience. Or well not the doctors fault, it is a tuff deceice to figure out. Took me 15 years..

    Can’t wait for part 2, can you please update us with reference material you have on how this works? Or point us in the right direction in any way? I tried to google myself (which im usually good at) but cant find anything close.

    I beleive it is complicated materials but 20 URL’s would do fine too.. :)

    Even if it didnt work out please let us know. Sometimes you are better off with 4 eyes.

    Also to everyone with CD. Spectrazyme helped me (No cure but a releaf). As well as gallbladder cleanses (Google it, no cure but common for people with CD.)

    /Urban

  26. Urban says:

    Or please confirm that you are still alive otherwise i drop this idea pretty quick! :)

  27. Robin says:

    I appreciate your articles. I >think< I may have healed my gluten intolerance, too, but I'm afraid to try a challenge. I have been working on stomach acid, methylation and pyroluria (a zinc and B6 deficiency condition).
    I hope you do decide to finish your story.
    Oh, by the way, I LOVE Dr Lipton's videos. He is phenomenal!

  28. Stephanie says:

    I just found your blog and would love to hear the rest of your story!

    Ps our littles are 4 days apart. My Rio was born 6/4 after 12 hours of labor, completely natural and we didn’t know the sex either. :)

  29. Stacie says:

    Great article…good to hear there is hope of getting rid of this!

  30. March 2013 Update: I’m WAY busier than I expected to be with my 9 month old daughter and running my business. I haven’t been able to find the time to sit, reflect and write about my experience of healing my gluten intolerance yet and had no idea at the time I wrote this post that it would take this long. Please understand that I WANT to share my story with you, I just need to prioritize my time right now and baby Madison is my first priority. I am celebrating 3 years of being able to re-introduce gluten into my diet this month. If it were as easy as telling you to do A. B. C. then I’d just post it but it wasn’t that easy. It took years to to get to where I am today, healthy and thriving with NO food allergies, sensitivities or intolerances for the first time in my life. I can promise you that I’ll share the rest of my story, I just can’t make any promises as to WHEN I’ll be able to do it. I’m sure life with a new baby will settle down at some point and I’ll be able to return to writing and blogging. Thank you for your patience and I apologize for not being able to respond to each comment right now.
    Crystal – Prenatal Coach recently posted: The Conscious Birth of Madison Rose – Intervention-Free Home Water Birth | PART THREE | A Father’s Perspective

    1. Shazi says:

      Hi I just read Ur story about the journey of gluten intolerance and how u get rid ! Congrats ! Actually I am worry a lots coz my baby has gluten allergy and she is only 17 months old’ she is my first baby and she is too much ill, here lack of awareness of this problem even doctors nt treating rightly my baby ‘ I m depressed slots about her pls guide me what I do for her’ waiting Ur reply!

  31. Urban says:

    Good news! I will be exited to read once you make the time for this.

    Life can be busy and family comes first, i agree on that but please share this somehow. I’ll happily buy your book and think many others will too…

    Or send me the material and i’ll write the book for you?

    Best regard
    Urban

  32. Courtney says:

    Thanks for posting!! I’m an 18 year old whose experienced the same symptoms and am currently waiting for test results regarding C.D., this provided a lot of helpful information, thank you!

  33. Margo Charbonneau says:

    I too would love to hear the continuation of your journey. I have had vitiligo, an autoimmune disease for 30 years. I began eating a paleo autoimmune diet and then after 3 months continued with a paleo diet for 8 months now. My vitiligo is almost gone! I would love to think that I would not have to eat such a restrictive diet for the rest of my life……but if I do……then it’s worth it! Your story is inspiring and I wish you continued good health.

  34. Kat says:

    I’ve suffered for the last 2 years with severe gluten intolerance but had cut it out already so can’t have the IGA coeliac test. Following reading this article and an amazing book by Andreas Moritz, I’ve researched more and found a DNA testing facility and sent off for a genetic predisposition test kit which will rule out whether I could possibly be coeliac without having to go through eating gluten again.

    Fingers-crossed this will give me the answers!

    Info on Genetic testing from the Coeliac UK website:

    More than 90% of people with coeliac disease have HLA DQ2 and HLA DQ8 genes compared to 30% of the general population.

    Although genetic testing cannot be used to diagnose coeliac disease as the associated genes are also present in people without coeliac disease, there is a role for genetic testing in eliminating uncertainties around diagnosis.

    In adults, genetic testing is not routinely carried out but may be used to rule out coeliac disease, as if you do not have the associated genes, you are unlikely to have coeliac disease.

    I hope this is helpful to other people.

    Kat x

  35. Amber says:

    I would love to hear more about how you’ve done this! I understand it probably isn’t a cure, but I would like to be able to try something to help with my gluten intolerance symptoms.

  36. nabil says:

    Dear crystal, where is part 2 of—How I healed my gluten intolerance.

  37. PART TWO is now available!
    Crystal – Prenatal Coach recently posted: How I Healed My Gluten Intolerance – Part 2

  38. Han says:

    Hi Crystal

    Thank you for your story. May I get your permission to translate in Chinese and post it in China. It will be a great

  39. Rachel Sarah says:

    I finally checked back and your link was working again! :)

    GREAT explanation of what Celiac Disease is and why it should be curable. Very concise and clear. Heading over to read the next in this series.
    Rachel Sarah recently posted: What is the Gut-Brain Axis?

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

CommentLuv badge